González R, et al. – This multicentric study assessed the quality of life (QOL) in home–ventilated children and their families. Accumulated evidence showed that the perceived QOL by children with home mechanical ventilation (HMV) and their families was lower than that of healthy children. However, parents were happy to care for their children at home, even though it negatively affects family life.

• The authors conducted this study using a semi–structured interview about the impact of HMV on families and an evaluation questionnaire about perceived QOL by the patient and their families (pediatric quality of life questionnaire (PedsQL4.0)).
• This study enrolled 41 subjects (mean age 8.2 years).
• Global scores in PedsQL questionnaire for subjects (median 61.4), and their parents (median 52.2) were below those of healthy children.
• Evidence showed that 24.4% received medical follow–up at home and 71.8% attended school.
• Mothers were the main caregivers (75.6%), 48.8% of which were fully dedicated to the care of their child.
• 71.1% consider economic and healthcare resources insufficient.
• Findings displayed that all families were satisfied with the care they provide to their children, even though it was considered emotionally overwhelming (65.9%).
• Marital conflict and neglect of siblings appeared in 42.1 and 36% of families, respectively.