Cocreating research priorities for anorexia nervosa: The Canadian Eating Disorder Priority Setting Partnership
International Journal of Eating Disorders Feb 08, 2020
Obeid N, McVey G, Seale E, et al. - In order to recognize and prioritize the top 10 research priorities for females, 15 years or older, with anorexia nervosa, by combining equal input from those with lived experience, families, and healthcare professionals, establishment of the Canadian Eating Disorder Priority Setting Partnership was done. In this project, a five-step process including—the use of a survey, response collation, literature checking, interim ranking survey, and in-person prioritization workshop—was applied for soliciting the research priorities from the Canadian eating disorder community. The James Lind Alliance guidelines were closely followed in this project. From 147 individuals, 897 priorities were reported in the initial survey, with almost equal representation from all three stakeholder groups. The derived priorities included a range of broad questions that have the potential for multiple implications. Interestingly, the top three priorities were linked to treatment-related questions; these were looking for answers correlating to effective treatment options and efficacy studies, how learned experience can be leveraged to help inform effective treatment strategies, and collaborating to assemble surveillance or epidemiological data to better position the field to promote for more therapy options. The top 10 questions, in general, could be more commonly classified into groups of questions linked to those pertaining to treatment, education/training, epidemiology, and services speaking to the overlap or relatedness of some of the priorities. Additionally, researchers identified some priorities more suitable for studies employing a trial methodology RCT, while others seemed mote suitable for surveillance studies, pragmatic trials, qualitative/narrative studies, or mixed methods studies rendering further support that much research is still required to better inform the field. The top 10 research priorities derived from this structured process led to the achievement of the purposes of meaningful partnership development and knowledge exchange among a diverse number of stakeholders. In all stages and discussions, the project involved the “patient” voice. The top priorities consider well the community's opinion of what is most relevant to inquire next in AN affecting females.
Go to Original
Only Doctors with an M3 India account can read this article. Sign up for free or login with your existing account.
4 reasons why Doctors love M3 India
-
Exclusive Write-ups & Webinars by KOLs
-
Daily Quiz by specialty
-
Paid Market Research Surveys
-
Case discussions, News & Journals' summaries