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Demographics and baseline care among newly transitioning adult congenital urology patients

Journal of Pediatric Urology Jun 04, 2020

Leva NV, Copp HL, Quanstrom K, et al. - This study was attempted to present baseline demographic and disease characteristics of this population, understand gaps in care, and gauge follow-through. Researchers conducted a retrospective chart review of all new patients in the TU clinic at UCSF from February 2017 through January 2019. Demographic and clinical data were obtained from medical records after approval from an institutional review board. This cohort enroled 20 patients with spina bifida and neurogenic bladder, 5 with bladder exstrophy, 3 with disorders of sexual development, 5 with obstructive uropathy, 2 with cloacal anomalies, and 1 patient each with calcinuria, reflux nephropathy, prune belly syndrome, and urachal cyst. The findings demonstrate that new patients to the TU clinic often warrant additional workup, updated testing, and referrals to sub-specialty care as these requirements are often unmet at the time of presentation. The etiology of this is not clear and it may be due to insurance problems, inability to distinguish an appropriate adult subspecialty provider or access to care issues. Future evaluation into barriers to implementation of transitional care is required to serve comprehensive management to this challenging patient population.

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